Tuesday, February 1, 2011

And there are more tests ( there is TMI, you are forworned)

I took Tyler back to the pediatric GI specialist today at Vandy, and she pretty much didn't know what to say. She said "I'm pretty sure he's just constipated" well DUH I could have told you that, he has been since he was 4 months old and he is will be 2 in April. So I asked her about my concerns with the two different gastric tests they did, (the enema and upper GI) she said I'm not sure, they look like there is no physical deformity, I still don't think that its hirschsprung's disease, and I agree with this, because it can be fatal, and he is obviously not under weight. Although he has put NO weight on since at least July, he is obviously not malnourished,and his height continues to increase.

So she told me that he has something going on but he is so backed up that what is coming out is going around the clumps (I can't think of the word I want to use). So he is just so backed up that it is causing his stomach to not empty. Which I'm not sure that I buy, we have increased his meds since seeing her, and he is having more diarrhea that he had even as an infant. I'm frustrated because surely if it was just constipation since he has been taking a laxative since he was 4 months old it would have cleared out by now and he should be fine.

She is going to run some more tests for allergies to try to rule that out. She is at least doing something. She is kind and patient and answers as much of my questions as she can. Today she even went to the head of the GI clinic to make sure what her plan was, was the best way to proceed. I am very thankful that they are doing something even if it is a slow process.

So the plan is to give Tyler more enemas, probably at least two maybe more, and then quadruple his meds and MAKE him have diarrhea so that it is literally the color and consistancy of ice tea and having this for a few days. I know the next week or so is going to be a pain in the butt, but hopefully it will help him in the long run! I just feel so bad that he can't go with out pain and is starting to get uncomfortable at times.

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